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But this Tuesday is special - it's the honey's birthday!! WOO HOO!! I wish we were going out to a big steak dinner to celebrate but I still can't sit upright for very long and a car ride is my least favorite thing to do right now. I'm actually getting better at sitting up, and probably could do dinner somewhere but all the decent places to go are at my max limit for a car ride... Sheesh - I hate that I can't do big plans to celebrate.
Course, what's worse is that the carpet guys that were supposed to be here at 10 are now not coming until 2, and it'll take 2-3 hours to get it finished so that means they will not be gone by the time she gets home from work. Last night the kitchen and bathroom floors got installed... the guys were here until 1030 pm!! OMG!! But, one of the guys did put our new toilet in for us for a lot less than it was going to be with HD's installers.... so, I guess that was a wash.
All that's left to fix now is the sheetrock in the small hallway and the gutters. I will be glad when all this is over. It has stressed the other half out majorly and not to mention has stressed me out as well. It will be nice to have everything done and quiet around here where we can enjoy it. We got each other the PS3 for Christmas this year for the games and the Blu-ray. It's a good investment since we're such home-bodies that enjoy staying in and watching a movie with no lines to the bathroom, personal volume control, and much cheaper candy and popcorn!! Now, with Netflix as well, it's cinema paradise!! I can't wait to get Madden 09 for the PS3 - I'm not a big gamer but I do enjoy it. I can't wait to get back to the Wii.
I loved the Wii fit with the games and yoga. I can't wait to get back to working out period. I have enjoyed being laid up this time w/o a lot of steroids - I noticed I'm not putting on the pounds like I usually do with a MS flare. I know the food tastes so good on solumedrol but I could do without all the extras!! LOL Speaking of food, I did the bacon pancakes on this past Sunday. They were very yummy! They cooled off a little quick but the taste was yummy! The pancake batter just sucks up the bacon grease and the flavor combo is yummers!! Have I said that already??
I can't believe it's already so far into December.... It's going to be Christmas before I know it. We haven't gotten anything Christmas out in the house... it's still all in the attic since all the working in the house and me unable to pick up the milk jug. It's going to be a little odd without a tree this year but I think we'll make do... We talked about getting one of those rosemary trees and putting a few ornaments on it just to have something in the house. Will probably end up doing that.
I didn't really have anything in mind when I started babbling. I'm just listening to my latest itunes purchases and catching up on some email correspondence. Haven't even turned on the boob tube yet - but I'm sure I will. No sense not frying my brain more than it already is!!! AHHAHAHAH
Holy Moly Mackeral!!!!
I'm reading a decent book I decided to get upon reading about it at B&N.com. In the book, which was originally written by by a Sweedish author and translated to English (which, by the way, will be a topic for a future post about a different world view that was a little hard but very enjoyable to adjust to)... ANYHOWS..
I had to write a 2nd post for today because in this book one of the main characters is treated to a dinner with bacon pancakes and ligonberries. Now, I've had pancakcs and ligonberries - very yummers! But, wtf is a bacon pancake??
Of course, I go to the trustee Google toolbar and type it in... Follow along with me on my Goog-ourney:
The 1st listing is this site to what an actual bacon pancake is... Very tasty sounding! And yes, your cholesterol will go up just reading it!!
Now, look up in the top right corner of that blog page and there's a link to some other hilarious bacon themed bandages and air freshener (yes... that's a hard word to mis-type so you read it right the first time!)
Now, the 2nd stop is a heaven for bacon lovers - of which I proudly raise my hand!! It's a blog about nothing but oinking on bacon!! It's a bacon a day recipe. OMG! Just browse that a while... again, do not do this before a trip for the annual physical or to your cardiologist because the LDL is going up!
This was a very shiny thing for me tonight which caused me to put down my book and come share with you!!! Oh, I am soooooo looking forward to pancakes and bacon this weekend - i was planning on French toast with my bacon on Sunday morning but things might change!!! By the way.... the first site has pictures!!!! Be careful, I had to clean some drool off my keyboard!!
Not really... but it's a 4-legged representation of what I feel like! I still can't even sit partially up in my side of the recliner couch. So, my beloved Venus - the not even 2 year old adopted mutt - has deemed the brown couch hers while I stay on our red one. I've gotten some really good shots of her relaxing with me while I'm home. And, believe it or not, the one on the left was taken 2 days ago but the one on the right was taken today! Looks like she went from one spot right to the next one...
Course, her big sister is too cool to pose for pictures anymore! HA! Not really, but she would normally be curled up on the other side of the couch except she takes advantage of being on one of the beds and spreading out. The little one is curled up on the heating pad and blanket. Today was "cold" for us down here in the gulf coast - our high was only 55 today so we'r
e all in our heavy winter coats down here! It might even hit freezing on the north side of H-town tonight! Brrrrrrr! Course, I know all y'all above the Mason-Dixon line are laughing y'alls arses off at me saying it's cold but anything below 70 and we go a little bonkers!! At least I do - my blood is too thin for any color other than green or brown on the ground.
I have been in snow here in Texas - even in the south part of Texas. I need to scan in pictures of the beach house deck covered in snow from 2 years ago! It's great! My partner said about 2 minutes after they went back inside a seagull landed on the railing and did the "hot potato" dance for a few seconds and then flew off cuz of the snow! That would've been hilarious! I do like it cold on Christmas Eve and Christmas though - it doesn't feel right when it's 80F. And, yes - I have been swimming on both Christmas Eve and Christmas Day. Both in Texas and visiting my grandparents in Little Rock, Arkansas. There was one Christmas where I opened my gifts in my bathing suit, along with my cousin and family. Those pics are still on slides, which my brother and I keep meaning to get to have them transferred to DVDs. I wore shorts this Thanksgiving day and for most of the weekend. I think it hit 85 that Saturday afterwards...
I remember being told, jokingly by my neuro, that my diagnosis meant I had to move north! He was joking but we all know how the heat is an MSer's main kryptonite! I have a cooling vest I now use religiously for outdoor events during the wanna-be winter and sissy-spring we get down here (technically summer is our only season with a slight dip into fall). I just can't imagine living somewhere without the heat, though - I think my skin would eavaporate off of me!! I guess I could always find a "dry" heat somewhere! AHHAHAHAHA What's funny is when I've traveled to the east coast during the summer I learned to request/ask for air-conditioning! Now, it's not so hard to find but it was for a while! I think New York and Chicago had more days over 95F last summer than we did. On a down note for the Bayou city, though, our "feels like" temps were higher...
TGIF! Doesn't really affect me - same type day for me as the last 21 days. I'm even losing days of the week. I didn't realize today was Friday until my partner told me she was excited for the weekend... how sad is that???
Car ride to the doc for my 2 week follow-up! Not a fun car ride but I got some chick-fil-a nuggets and waffle fries out of it!! WOO HOO!! And a warning from the doc to take it easy and the rest of the month off... I agreed to 2 more weeks of catching up with my relationship with my DVD player at a minimum. I lucked into another wonderful doc - he was running really late this morning and I didn't get back to the room for another hour after my appointment time.
Being that I'm good at lying down and standing up, with a short burst of walking but NOT sitting - the hour wait was painful. So, I was in pain curled up into a ball on the exam table when he came into the room. He told me he was sorry so many times I lost count. He said my incision was healing great and I needed to start walking around more often for shorter bursts... and he gave me that half-arm hug... I pegged him at first in his early 40s but now I think he's older - he had a grandfather-ly way about him this morning... Either way, I was glad I put my spine in his hands.
Cue the pain meds = which I have been taking sporadically as needed since the beginning of this week. Leading to major loopiness now while I type this post! I have absolutely no idea where I was going when I started this post. I think I actually changed topics in my head a couple of times as well, and I don't remember any of them... I might have been extremely profound for this post! I might have been highly amusing!! Oh, hell... I'd still just be me!! LOL
Okay, who the hell knows where I'll go now and I don't think anyone wants me to visit wikipedia on anymore fetish hunts!! AHAHAHAHAHHAHAHAHAHH
We all know some of the less glorious aspects of this crappy disease... the bladder and bowel symptoms we get. Some of us go way to often, some of us can't get enough out when we do go, others go way too much, others don't know how in the hell that much liquid can come from one person....
Me, about 2 years before diagnosis, I spent more than 2 weeks in the hospital with what they eventually (after a colonoscopy and another hospital stay) deemed IBS - irritable bowel syndrome. They thought I maybe had colitis or Crohn's but the colonoscopy ruled those out. I lost almost 15 pounds in about 3 weeks and couldn't keep anything in me. All the doctor's and hospital visits came in handy these past couple of years for dealing with MS... I could barely go to work and I was very thankful, when I did, that the bathroom was only a few steps away. The docs put me on steroids (again, good dress rehearsals...) and I did a severe diet change for about 2 months and I seemed to "heal".
Course, this wonderfully mysterious auto-immune disorder that we share called Multiple Sclerosis could have been the culprit all along. There are TONS of nerves in our bowels... the process that gets the crap, literally, out of us is called peristalis. It's one of those autonomic nervous system processes that works without us having to think about it. Course, there are days when we have to work on it.... Correctol has become a very close friend of mine! Don't you love how MS breaks down the barriers in discussing CRAP????
My neuro seemed to agree with me during one of our longer, initial diagnosis discussions. I never really got mad at all the GI and OB-GYN docs that I saw as a result of that CRAP I went through during that time. (They thought endometriosis was the culprit as well - and still is part of the problem) Besides, I could have been diagnosed with Crohn's and MS - we all know that the auto-immune disorders are very co-dependant on each other and like to share habitations a lot. How many of us probably also have RA with our MS put the general joint pain we all dismiss as a result of the steroids or other meds? I've had my feet and hips xray'd a bunch over the last couple of years because of my "pain", and the docs wanting to rule out RA.
Wow - didn't know I was going to delve into my past so much for this post... And, it started just to be a really funny one about a website I found reading someone else's blog about Crohn's (I'm a caregiver to a Crohn's patient - my partner). It's a website where you can find a toilet no matter where you are in the world - and you can add toilet sites!!! Here's the link - it's called SitOrSquat.com .
Hilarious!! I'm going to go back to watching the boob-tube and listen to the roofers working above. They got here at 645 this morning - wonder if the sunrise was good from on top??
We all know how much all that racket going on in our head can drive a person batty! All those crazy, mamby-pamby thoughts that go swirling around in there from time to time... Should I have super-sized? Should I have chosen that school instead of the other school? Did I really want to be home while they're fixing our roof....
Holy Moldy Cannolli!!!!!! I now know why we call it a "pounding" headache when it's one of those kick-ass ones! They're here stripping the old roof off the house today. Got here bright and EARLY at 730 this morning! I'm so thankful that the insurance is giving us a new roof. So very thankful. But, seriously, having an out-of-body-migraine is not something I ever wanted to try out-of-body! The dogs have all curled under their blankets to get away from it... I don't have enough blankets. Well, I take that back - I have enough but I'd also like to be able to breathe!
I moved from the bed to the couch thinking it would quiet down a bit in the living room - the dang vaulted ceilings should count for something, right? Nope. Just as loud out here. Oh well, the couch is my best friend anyway right now. I actually am bending over just a little bit (and, if so many of my friends saw that line they'd have fodder for years!!!) and putting on my socks on my own. I'm walking around the house very well and using my picky-uppy thing quite a bit. I can't tell if I'm doing too much or not enough. My spurts of pain tell me I'm doing too much but then my ever-growing ass is telling me I'm not doing enough. SIGH.
I wonder how long my immobility is going to last. Neighbors spent yesterday putting out holiday decorations on their houses and yards. I so would like to get all the Christams stuff down from the attic and start adding a little cheer to the household... Course, the carpet/tile people come next week to replace the flooring so we're actually going to be "packing" up all the crap in the 3 bedrooms, bathrooms, and kitchen so that the carpet/tile people just have to move the furniture. So, adding stuff to the mix right now is not a good idea. Another SIGH
I feel like I'm going through an MS attack right now.... I know what's wrong but I really can't do anything about it but "heal". My body has to do all the work right now. My brain has to adjust to my imposed restrictions right now. I don't like it. There's nothing more I can do about it either. I go back to the doc's later this week. I wonder what he's going to be expecting... just like when you head back to the neuro's office after the week on our IV cocktails. You never know if you'll get the nodding head, eyes turned sideways look that means neuro doesn't like how your body has responded to the meds... or will you get the clapping hands and smile that means the meds won the battle this time and we'll just wait for CD's next attack. Double SIGH
Oh well, enough for now. I'm going to go back and catch up on my daytime TV that is horrible! Course, that's what I have my DVD player for... can't load the dang thing myself but honey loaded my choices last night for me... Yeah!!
This is the puppies green monster - all covered in snow!! of all things!!! The pups were in high gear because of the cold. They were out running around last night and this morning chasing the squirrels and running around.
